
Featured Blogger of the Week: Oct. 3-10
Crystal Lane, Randomly capitalizeDPost #1
Hey, D-OC! Check out the new look for The Diabetes Online Community! Gina did a fantastic job. I am honored she asked me to kick off the month of October as the Featured Blogger of the Week here on The Diabetes OC. Take a look around and see what the site has to offer.
Now enough about you all, ha! I kid. I've been living with and managing my Type 1 Diabetes for over 25 years. I was diagnosed at 6 years old in 1985. An estimation between my parents and I, we figure I was testing my blood glucose via urine on test strips, cut in thirds by my Dad, to get a range of blood glucose for about five years. Joy.
Possibly in 1990 I started using a very large Accu-Chek meter. It took about five minutes to read a digit. We're still unsure on that meter but a Huge and welcome change. No more "pee-cup" on the back of the toilet in the One bathroom for a family of five.
I recall diagnosis by my Pediatrician, getting labs done in the local Hospital, visiting Joslin in Boston. I remember practicing on an orange. I remember my first plunge into my right thigh, my first sleep over, many school birthdays where my snack was specific and certainly not cake or cupcakes. I will never forget getting caught buying chocolaty snacks at lunch. I was never picked on in school about my Diabetes. If I did, I don't recall. All my years in school I was required to go to the Nurse's Office to test my blood glucose, eat a snack if low or dose for a high. I was happy to have freedom in College, testing and shooting up wherever necessary. I did have to tell each Professor that I carry food and I may need to eat during class; deal with it.
Through all that I have very fond memories of my childhood. It was not all about Diabetes. I had many interests; jumping in leaf piles, animals, kickball, go-carting down the hill on our street, forts in trees, swinging on branches, riding my bike, sledding in the winter, building snow forts, watching my Dad spray water on a ramp in the winter to make it faster, trying skateboarding and leaving it to my brother, enjoying horses with my sister then meeting my best friend through some horse shows, gymnastics...... it was a full childhood. Most of it were those memories, with a few important Diabetes moments that shaped me forever sprinkled in.
I give my parents loads of credit for letting me be myself, more importantly they let me be a kid. Every holiday it was a debate between my Dad and Mom about the size of dessert I would receive. Back then "cheating" was as common as "Not me." My Mom never won, sorry Mom, I was Daddy's little girl and he slid me some extras. They let me find my way with my interests. They let me create my path with education and my future interests. They supported me, encouraged me and loved me. My Mom played a pivotal role when I was a teenager and angry about having to take a shot before I ate. Testing my blood glucose was not the issue, the issue was I wanted cookies and then to be left alone. She told me the consequences and left saying, "You know what you need to do and why." That moment changed me forever. I thank my parents often for how they raised me.
In college I had more freedom and it scared me a bit. I was not tempted by most "typical" college experiences. I managed best I could and took one day at a time. I was there to learn and get on with my life.
My first job after college woke me up to a reality that I did not want to live in but knew I had no choice. This was the first time, in 15 years, that I started to deal with some adverse reactions to my Diabetes. "But you look fine." "You were drinking last night just like every young person out there." "What could possibly be wrong now?"
I struggled for a couple years then moved back home, but for different reasons. Through the past ten years I've dealt with the worst and the best of every situation that came my way. Three years ago I decided to find a job first, worry about benefits later. I do not regret my decision. Those with a chronic illness are not left with many choices; find a job with benefits or marry someone with that job. Two options were not my style. So I made a third. Yes, it's been hard. But I Knew it would be. I knew I would struggle with income and needs.
Out of 10 years of anger towards the world in general but never giving up, I found the D-OC and a way to advocate. Finding, interacting and finally meeting other people with Diabetes has changed my life forever. I'm grateful for what the D-OC is and continues to become. I'm also grateful for my Boss; she has never given up on me during some really tough struggles the past three years.
We each choose our path. We make our decisions. They are ours. I have no regrets with my journey of 32 years thus far. I also very much look forward to the rest of the journey.
Thank you, D-OC. I love you all, sincerely.
To learn more about Crystal Lane, check out her blog, Randomly capitalizeD. She also tweets and takes photos. She is a very opinionated and loud voice amongst the D-OC. She has no plans to stop.